Our Community

Shade’s Outreach Coordinator, Martina, interviewed a member of our community. Her answers provide insight into the way of life in Shinyanga, Tanzania, where you will find Shade’s Campus.

Creating Change

Our latest social media series was called Creating Change. Over the course of seven posts, we shared Shade’s strategy for creating change for people with albinism in Tanzania. Our three main focuses are education, advocacy, and faith, and we dug a little deeper into each of those to answer some of your questions. Here’s a recap, in case you missed it!

What are some ways to create change for persecuted people with albinism? (1/7)

Education + Advocacy + Faith = the Shade approach

📓 Education opens the door to a brighter future.
📣 Advocacy paves the way for change
✝️ Faith emboldens us to walk as children of God.

Stay tuned this week for our #CreatingChange series. Now that we know the facts (see www.shadetz.org/2020/08/albinism-101), let’s create change for PWA.


Why is education important, especially for children with albinism? (2/7)

📓 Education equips children for bright futures.

‼️ But, getting a quality education isn’t always easy for children with albinism. They are often kept home by family members, either to protect them or because they believe it’s a waste to invest in a person with albinism. If sent to school, they often are bullied and face the challenges associated with low-vision. Often teachers aren’t equipped to accommodate their impairment.

👨‍🏫 Shade School will be a place where children with albinism can have access to quality education. More on that tomorrow…


What is the vision for Shade School? (3/7)

💬 The motto of Shade School is: Raising Leaders, Changing the World. We aim to help children achieve their full potential and become change-makers.

We have a focus on:
💯 Quality – an English-medium school with top of the line educational standards
👩🏿‍🦽 Inclusivity – children with and without albinism, or any other disability, are welcome! (more on that tomorrow…)
🔐 Safety – security and systems in place that create a safe place for students with albinism
🤸🏽‍♂️ Holistic Care – caring for the student beyond in the classroom
✝️ Faith – embodying and sharing the good news of the Gospel


Why should there be inclusion in education? (4/7)

〽️ People with albinism face ostracization. They are often separated—in physical proximity and educational opportunity—from children without albinism. This separation perpetuates the misunderstanding that people with albinism are different, lesser, and incapable of achieving.

👫🏼 Children without albinism at Shade School will have the opportunity to grow up knowing differently. They will study, live, and become friends with their peers with albinism. They will be the next generation that knows the truth and continues to pass it on, ultimately dispelling the myths and misunderstandings about albinism.

💯 Inclusion benefits everyone. Diversity enriches us all


Why is advocacy important? (5/7)

📣 Advocacy brings awareness, and awareness is the first step towards change.

👍 Understanding that people with albinism are just like everyone else—apart from two differences: low vision and reduced pigmentation—will lead to a realization that they deserve the same rights and opportunities.


What does advocacy look like? What can I do to advocate for people with albinism? (6/7)

🇹🇿 In Tanzania, advocacy looks like seminars, community outreach, inclusive education, radio broadcasting, people with albinism in leadership, and support to people with albinism who are working in the community.

🇺🇸 In the US, advocacy looks like: speaking about the persecution of people with albinism, sharing information, prayer, and financial support for programs that are creating change, and….posts like these!

So you want to be an advocate?
📣 Speak about albinism to your networks or ask a Shade rep to do so (even virtually!)
👍 Like, share & commenting spreads the reach of social media posts
📰 Educate yourself! Start at www.shadetz.org and sign up for our newsletters there
🙏 Pray for hearts to change toward PWA, violence would end, truth would prevail
💲 Give financially so that work can continue at www.shadetz.org


Why is faith important in creating change? (7/7)

✝️ We believe that true transformation will come when all people experience the Father’s heart of love for them, the forgiveness of Jesus given to them, and the empowering work of the Holy Spirit guiding them. When faced by the power of God’s love, violence and prejudice against people with albinism will not stand.

👨‍👩‍👧‍👦 All of Shade’s work is infused with the Gospel message. Our Campus aims to be a community centered on family in Christ, reflecting His heart in Psalm 68:6.

To stay informed and continue to advocate with us, please like and follow Shade on social mediaThis is a simple way to make a difference for people with albinism in Tanzania.

Albinism 101

This past week on social media, we shared a series called Albinism 101. The goal of these photos and facts was to provide information about albinism by answering some common questions. Being informed and sharing that information is a powerful form of advocacy for people with albinism- a people group that faces discrimination, attack, and health challenges. Here’s a recap, in case you missed it!

What is albinism? Is it common? (1/6)

🤍 Albinism is a genetically inherited condition resulting in reduced pigment in the skin, eyes, and hair.

🇹🇿 Albinism is much more common in Tanzania than in the west. Approximately one in every 1,400 children born in Tanzania is born with albinism. This is the highest rate in all of Africa and a significantly higher rate than in Europe and North America, where approximately one in 20,000 people has albinism.

👩🏿‍🏫 This week, we will be sharing some facts about albinism. Consider it your Albinism101.


Why do you say ‘albinism’ and not ‘albino’? (2/6)

👍🏻 By saying ‘person with albinism,’ you are putting the person ahead of their condition. They are people first, in the same way that it is more appropriate to say ‘person who is blind’ rather than ‘blind person.’


Do people with albinism face health challenges because of their condition? (3/6)

🕶 Yes. Albinism affects the eye, causing visual impairment. Many people with albinism are legally blind and all have extreme sensitivity to light.

☀️ Due to a lack of melanin in their skin, people with albinism are very susceptible to skin cancer, and early stages of skin cancer are often seen in children. A lack of awareness on how a person with albinism protects him/herself from sun exposure and possible inaccessibility to sunscreen only worsen their health issues.


What challenges do people with albinism face? (4/6)

🚫 Discrimination & Rejection. They are often stared at, made fun of, and rejected by their peers. Many husbands abandon their wives when they give birth to a child with albinism. Many newborns with albinism are killed at birth. Attempts to protect children with albinism may lead to them being locked away and being robbed of a normal childhood and education. Adults with albinism find it hard to become employed.

🚫 Superstition, Witchcraft & Attacks. In Tanzania, albinism is misunderstood. Witchdoctors take advantage of this, spreading misinformation that people with albinism possess magical qualities and that their body parts can be used in rituals to bring wealth, power, and luck. This leads to attacks and killings of people with albinism for their body parts.


How many people with albinism have been attacked? And where? (5/6)

🛑 More than 520 attacks on people with albinism have been recorded since 2006.

🛑 Tanzania has the largest recorded number of attacks at over 170.

🛑 There have been attacks recorded in 28 countries, some of which operate within a black market for the body parts of people with albinism.


Why is this year different than others? (6/6)

🗳 It is an election year in Tanzania. Election years are particularly unsafe for people with albinism.

❌ People who are running for office may turn to witchcraft in the hopes of increasing their odds of winning.

❌ This, coupled with people who are in desperate circumstances and are willing to harvest body parts for money, leads to a network of people invested in the persecution of people with albinism.

❌ According to the U.N., the sale of a person with albinism’s body can fetch up to $75,000.


To stay informed and continue to advocate with us, please like and follow Shade on social media. This is a simple way to make a difference for people with albinism in Tanzania.

The Brilliance of Christ


Charles Spurgeon once said that when a jeweler shows his best diamonds, he sets them against a black velvet backdrop. The contrast of the jewels against the dark velvet brings out the luster. In the same way, God does his most stunning work where things seem hopeless. Wherever there is pain, suffering, and desperation, Jesus is. And that’s where his people belong–among those who are vulnerable, who think nobody cares. What better place for the brilliance of Christ to shine?

-Jim Cymbala, Fresh Wind, Fresh Fire

Suffering

Written by Claire Fedele

When I was young, I memorized Acts 5:41.

The apostles left the Sanhedrin rejoicing because they had been counted worthy of suffering disgrace for the name.

I’m really not sure why I chose this verse out of many; I guess something about just struck me.

Rejoicing for being someone who is worthy of suffering.

It was a compelling, baffling notion: to be worthy of suffering for the Lord.  

Even as I memorized the verse, I could only relate to it through the experiences of others. I had never faced anything close to what the apostles had.

As time went on, my eyes were opened to more suffering in the world as I worked among the poor in the US and abroad. Injustice, persecution, and systems that keep people down seemed to exist everywhere.

But it wasn’t until God actually caused me to suffer as I ministered to others that I started to see more clearly.

By being mugged, began to identify with people with albinism who live under the constant threat of attack.

By being falsely accused and threatened, I began to see how doing the right thing doesn’t prevent injustice from prevailing.

By being forced from the place where I’d served for almost four years, I saw how pride can lead to the extreme suffering of groups of innocent people.

The experience of suffering for doing what God had asked me to do not only opened my eyes, but caused me to understand greater truths.

I began to more deeply identify with the oppressed, becoming more equipped to effectively take up the cause of the poor and the needy (Jeremiah 22:16).

I began to identify with God’s heart for those who suffer, as well as His extreme suffering on this earth in dying for me.

And, I began to understand how the apostles could come out of suffering rejoicing. Although no one enjoys suffering, knowing that I had been able to do it for the Lord made it worthwhile. And the notion that I could proclaim- through my very act of suffering- that He is worthy of anything that I go through, is sure a reason to rejoice.

There is so much suffering in the world. Each person has a unique way in which they are to address it or to work for change.

But as we all do, let’s not shy away from entering into the suffering. In fact, let’s count it as joy if we are doing so for the Lord. Because as we do so, He will meet us there, open our eyes, change our hearts, and show us great and unsearchable things (Jer. 33:3) that we may have never known otherwise.


I come, God, I come
I return to the Lord
The one who’s broken
The one who’s torn me apart
You struck down to bind me up
You say You do it all in love
That I might know You in Your suffering.

Though You Slay Me,  Shane and Shane


“Joy is not the absence of suffering but the presence of God.”

Janet Erskine Stuart


“The test of our spirituality comes when we come up against injustice and meanness and ingratitude and turmoil, all of which have the tendency to make us spiritual sluggards. We want to use prayer and Bible reading for the purpose of retirement. We utilize God for the sake of getting peace and joy, that is, we do not want to realize Jesus Christ, but only our enjoyment of him. This is the first step in the wrong direction. All these are effects and we try to make them causes.”

My Utmost for His Highest, Oswald Chambers